By Gustavo Glusman, ISB Senior Research Scientist ISB has joined the Global Alliance for responsible sharing of genomic and clinical data. You can read the white paper here. In the last couple of years, we (Family Genomics at ISB) moved from analyzing a handful of genomes (for the Miller Syndrome project) to analyzing over a thousand high-quality whole genomes we have in-house – in addition to the low coverage data…
By Chris Witwer The Health and Human Service human research regulations are being revised. Scientists' input on whole genome sequencing data may shape the future of research. It's great that the article below says that change is "imminent." Here's an article that describes the issue: DNA Mapped in a Day Prompts U.S. Review of Genome Ethics And here's a document from the Department of Health and Human Services: https://s3.amazonaws.com/public-inspection.federalregister.gov/2012-07329.pdf The…
By Chris Witwer Nature.com recently published an article about research misconduct at a Chinese research institution. Dr. Mu-ming Poo, Director of the Institute of Neuroscience in Shanghai, is quoted saying, “Very few people in the funding agency or in the scientific community are willing to be the 'bad guy' and enforce the regulations.” Wait! Bad guy? That’s what I do for a living – enforce the regulations! Am I a bad…
